Advancing the Collection and Use of Patient-Reported Outcomes through Health Information Technology (Maryland)

Project Details - Ongoing

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Summary:

The patient’s perspective is central to healthcare decisions around prevention, diagnosis, treatment, and long-term care. Patient-reported outcomes (PROs) critically inform patient-centered outcomes research and support clinical management of individuals, shared decision making, patient self-management support, goal setting, and goal attainment. Standardized collection of PROs through patient electronic assessment and subsequent integration into electronic health records (EHRs) has the potential to improve system-wide comparisons of health outcomes, population health monitoring, and new opportunities to evaluate the effectiveness of alternative interventions and treatments. Despite their importance to patient care, PROs are not collected routinely. One promising solution to increasing collection of PROs may be via mobile applications (apps), which could allow for the integration of that data into EHRs or other health information technology (IT) systems.

This research, led by MedStar Health, will support the development of electronic applications that enable the collection of diverse PRO measures in a standardized manner across health providers and systems to enable broader data sharing for purposes of research. In addition, the team will pilot test the winning app of the Agency for Healthcare Research and Quality’s 2018 Step Up App Challenge competition. The app allows patients to complete physical function and other PROMIS measures. PROMIS measures are a set of person-centered measures that evaluate and monitor physical, mental, and social health. Finally, the researchers will enable the capture of an additional PRO measure around physical function by developing a new or modifying an existing app.

The specific aims of the research are as follows:

  • Collect and report stakeholder input regarding the functionality and usability requirements for the development of user-friendly applications that collect standardized PRO data and factors affecting their implementation. 
  • Design and execute a plan for pilot-testing the winning app from the Step Up Challenge Competition, in a mix of ambulatory care settings. 
  • Enable the capture of an additional physical function PRO measure in a limited number of ambulatory care settings by developing a new or modifying an existing PRO data collection app. 

The overall goal of the research is to advance the collection and integration of standardized PRO data in ambulatory care settings.

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