Project Details - Ongoing
- Grant Number:R21 HS027228
- Funding Mechanism:
- AHRQ Funded Amount:$293,981
- Principal Investigator:
- Project Dates:9/30/2019 to 9/29/2021
- Care Setting:
- Medical Condition:
- Type of Care:
- Health Care Theme:
Assessing the patient’s experience of illness and wellness is key to informing their goals of care and clinical management. It is important to understand how health information technology can facilitate the use of patient-reported outcome (PRO) measures to improve clinical management, health outcomes, and patient engagement. Researchers and clinicians must investigate the optimal methods and impact of collecting and disseminating PRO data with clinicians and patients in order to have positive effects on clinical care, quality of life, and outcomes in a practical way. Even with PROs integrated into electronic health records (EHRs), investigators found that clinicians do not always know how to interpret and use the data to inform patients and clinical management.
In this current research, investigators will develop and test PRO visual presentations for the EHR through research based on engineering and human-computer interaction principles to inform optimal data visualization and presentation. These data visualizations will be evaluated formally, focusing on outcomes of the usefulness, acceptability, and understanding of the scores by clinicians and patients.
The specific aims of this research are as follows:
- Evaluate patient preferences, understanding, usability, and acceptability of modes of PRO score presentation in the patient portal.
- Evaluate clinician preferences, understanding, usability, and acceptability of modes of PRO score presentation in the EHR.
The study will take place at NYU Langone Medical Center and includes three components. First, investigators will conduct qualitative interviews with patients and those clinicians treating hip and knee pain or osteoarthritis to understand their current perception of PROs and preferences for data presentation. Second, investigators will develop visualization prototypes that attempt to meet these preferences and use focus groups for evaluation. Finally, investigators will conduct a formal evaluation of the usefulness, acceptability, and understanding of the novel visualizations with clinicians and patients.
Ultimately, the investigators hope that this study will improve patient outcomes by accelerating the ability to effectively synthesize and communicate complex data to inform patient-centered clinical management for patients, families, and healthcare professionals.