Integrating Patient-Generated Digital Health Data into Electronic Health Records in Ambulatory Care Settings (Oregon)

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A new patient-generated health data (PGHD) guide has the potential to support ambulatory care practices in 1) identifying patient cohorts who can best benefit from PGHD capture, 2) accelerating adoption of health information technology solutions to support patient transfer of data, and 3) optimizing data review by mining large quantities of PGHD to identify patterns and red flags for clinical workflows and care planning.

Project Details - Ongoing


Patient-generated health data are “health-related data created, recorded, or gathered by or from patients (or family members or other caregivers) to help address a health concern.” By providing insights into the day-to-day health of an individual, patients and clinicians can employ better strategies to prevent and manage acute and chronic conditions, through monitoring for remission and relapse. In addition, clinicians and scientists can use these data to generate and apply analytical techniques to improve risk prediction and diagnoses. Food and Drug Administration (FDA) policies allow manufacturers of certain FDA-cleared non-invasive, vital-sign-measuring devices that measure biometrics to expand their use so healthcare providers can use devices to monitor patients remotely. While these technologies are promising, the ability for ambulatory care practices to successfully collect these data in collaboration with patients, transfer data to their electronic health records (EHRs), and use them effectively in clinics poses many challenges.

This research, led by Oregon Health & Science University, will support the development of an evidence-based practical guide on integrating patient-generated digital health data for ambulatory care practices. The team will first conduct an environmental scan that includes a literature review and input from stakeholders. Based on these findings, the team will translate the evidence into practical, easy-to-use guidance. Because ambulatory care practices are highly diverse and use EHR systems with different capacities for patient-generated digital health data integration, the final guide will be setting and vendor neutral so that practical guidance can be widely adopted.

The specific aims of the research are as follows:

  • Conduct an environmental scan on the current state and challenges of collecting, exchanging, and integrating patient-generated digital health data into an EHR system in ambulatory care settings. 
  • Develop a guide based on findings and recommendations from the environmental scan. 

The overall goal of the research is to advance the integration and use of patient-generated digital health data in ambulatory care settings.