With the advancement of digital technologies, patients can easily collect their own health data outside of the clinical setting to track and manage their health. While these technologies are promising, many ambulatory care practices lack the technical infrastructure, functional workflows, workforce capacity, and training to support the intake and use of patient-generated health data (PGHD).
Integrating Patient-Generated Digital Health Data into Electronic Health Records in Ambulatory Care Settings
Project Final Report (PDF, 6.06 MB) Disclaimer
The findings and conclusions in this document are those of the author(s), who are responsible for its content, and do not necessarily represent the views of AHRQ. No statement in this report should be construed as an official position of AHRQ or of the U.S. Department of Health and Human Services.
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A new patient-generated health data (PGHD) guide supports ambulatory care settings of all types in the design and implementation of successful PGHD programs that can improve patient outcomes.
Project Details -
Completed
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Contract Number75Q80120D00019 / 75Q80120F32001
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Funding Mechanism(s)
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AHRQ Funded Amount$201,531
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Principal Investigator(s)
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Organization
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LocationPortlandOregon
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Project Dates09/18/2020 - 12/17/2021
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Care Setting
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Population
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Type of Care
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Health Care Theme
Patient-generated health data are “health-related data created, recorded, or gathered by or from patients (or family members or other caregivers) to help address a health concern.” By providing insights into the day-to-day health of an individual, patients and clinicians can employ better strategies to prevent and manage acute and chronic conditions, through monitoring for remission and relapse. In addition, clinicians and scientists can use these data to generate and apply analytical techniques to improve risk prediction and diagnoses. Food and Drug Administration (FDA) policies allow manufacturers of certain FDA-cleared non-invasive, vital-sign-measuring devices that measure biometrics to expand their use so healthcare providers can use devices to monitor patients remotely. While these technologies are promising, the ability for ambulatory care practices to successfully collect these data in collaboration with patients, transfer data to their electronic health records (EHRs), and use them effectively in clinics poses many challenges.
To address these challenges and to advance the integration and use of PGHD in ambulatory care settings, a research team, led by Oregon Health & Science University, conducted an environmental scan to identify knowledge and evidence gaps pertaining to the use of PGHD, which then informed the development of an evidence-based practical guide on integrating PGHD for ambulatory care practices.
The specific aims of the research were as follows:
- Conduct an environmental scan (PDF, 1.58MB) on the current state and challenges of collecting, exchanging, and integrating patient-generated digital health data into an EHR system in ambulatory care settings.
- Develop a guide (PDF, 5.66MB) based on findings and recommendations from the environmental scan.
The guide is intended to support ambulatory care settings of all types—including offices of physicians and other health professionals, outpatient departments, community health centers, ambulatory surgical centers, and urgent care clinics and specialty clinics—in the design and implementation of successful PGHD programs that can improve patient outcomes. The guide is organized into folios to support ambulatory practices—in partnership with patients—navigate the many steps from design, to launch, to maintenance of a successful, sustainable PGHD integration program. Folios include planning considerations and practical activities to support organizations’ effort to deploy a new and complex care delivery modality into practice.
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Citation:
Boston D, Cohen D, Stone J, et al. Integrating Patient-Generated Health Data into Electronic Health Records in Ambulatory Care Settings: A Practical Guide. Prepared under Contract 75Q80120D00019 / 75Q80120F32001. AHRQ Publication No. 22-0013. Rockville, MD: Agency for Healthcare Research and Quality. December 2021.
Link:
PDF (6.06 MB)
The findings and conclusions in this document are those of the author(s), who are responsible for its content, and do not necessarily represent the views of AHRQ. No statement in this report should be construed as an official position of AHRQ or of the U.S. Department of Health and Human Services.
Principal Investigator:
Cohen, Deborah Jill
Project Name:
Integrating Patient-Generated Digital Health Data into Electronic Health Records in Ambulatory Care Settings
Document Type:
Clinical/Practice Guidelines
Citation:
Shaw RJ, Boazak M, Tiase V, et al. Integrating Patient-generated Digital Health Data into Electronic Health Records in Ambulatory Care Settings: An Environmental Scan. Prepared under Contract 75Q80120D00019 / 75Q80120F32001. AHRQ Publication No. 21-0031. Rockville, MD: Agency for Healthcare Research and Quality. May 2021.
Link:
PDF (1.58 MB)
The findings and conclusions in this document are those of the author(s), who are responsible for its content, and do not necessarily represent the views of AHRQ. No statement in this report should be construed as an official position of AHRQ or of the U.S. Department of Health and Human Services. (Persons using assistive technology may not be able to fully access information in this report. For assistance, please contact Corey Mackison).
Principal Investigator:
Cohen, Deborah Jill
Project Name:
Integrating Patient-Generated Digital Health Data into Electronic Health Records in Ambulatory Care Settings
Document Type:
Report
Disclaimer
Disclaimer details