Power to the Patient: Design and Test of Closed-Loop Interactive IT for Geriatric Heart Failure Self-Care (Indiana)

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Chronic heart failure (CHF) is a serious, costly chronic disease affecting nearly six million Americans and 12 percent of older adults. To prevent hospitalization and death, many patients with CHF are implanted with a cardiovascular implantable electronic device (CIED) to deliver cardiac resynchronization therapy and other interventions. Additionally, people with CHF are instructed to perform self-care management including monitoring themselves for symptoms. However, studies show many patients with CHF fail to detect symptoms or changes in status, misinterpret or misevaluate symptoms, do not take responsive action, or choose the wrong response.

The goal of this project is to design and test an information technology called Power to the People (P2P) to support self-care management among older patients with CHF. P2P is unique in using data from these patients’ CIEDs, which collect many types of data correlated with worsening CHF. CIED data will be used in combination with self-reported data, including weight, fatigue, and diet, to present patients with visual displays and recommendations for action, as well as to inform clinicians. The study is also unique in its emphasis on usable design for older adults through user-centered design.

The specific aims of this project are as follows:

  • Design novel and interactive prototypes of P2P to inform and support CHF self-care management. 
  • Assess the usability and acceptability of P2P prototypes for older adults with CHF. 

Following evaluation of the prototypes, P2P will be refined and readied for a future clinical effectiveness trial. Improving self-care management with technology by supporting decision making and timely, appropriate responses can improve the health of older adults and reduce costs associated with hospitalization and use of acute care services.

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