Practical Solutions for Engaging Consumers in the Design and Use of PHRs: Beyond User Centered Design
Overall Purpose:
Creating good tools for lay people -- ones that help them make healthy choices, better self-manage symptoms, and participate in disease management activities -- requires engaging users throughout the design process. This national Web conference, the third of a three-part series, built on the first two sessions' overview of Personal Health Records (PHRs), PHR data integration strategies, and how PHRs foster the patient-provider alliance. Effective design of PHRs begins with careful consideration of the "work" of personal health information management. Using the Systems Engineering Initiative for Patient Safety (SEIPS) work systems model (Carayon et al, 2006), the presenters characterized the people, living at home, who use familiar (e.g. paper calendars) and electronic tools to accomplish health management tasks. The presenters then illustrated the user-centered design activities employed by the teams engaged in Project HealthDesign, a national effort focused on stimulating innovation in personal health records. Details included one team's approach to give women with cancer the tools necessary to create a life-sustaining balance of family life and medical treatment.
Event Materials: