Feasibility Study of a Mobile Digital Personal Health Record for Family- Centered Care Coordination for Children and Youth with Special Healthcare Needs
This study evaluated the feasibility of a mobile personal health record application integrated with electronic health records using Fast Healthcare Interoperability Resources standards for longitudinal care planning, goal tracking, and communication with providers among families of children and youth with special healthcare needs. It found that while technical feasibility and early adoption were high, sustained use was limited due to technical challenges and mixed user experiences.
