Chronic Disease Management


Patient Intestinal Failure-ECHO Project (PIF-ECHO)

Description

This study will evaluate the feasibility and effectiveness of providing chronic intestinal failure patients and their family caregivers with direct access to live, virtual, multi-disciplinary (multi-D) support and education on best practices from a team of experts and peers. Such support can improve patient outcomes by enhancing knowledge, increasing confidence in self-care, and fostering a support network where patients can share lived experiences.

Grant Number
R03 HS030321
Principal Investigator(s)

Inform Shared Decision Making with Advanced Bayesian Causal Inference to Improve Quality of Pediatric Rheumatology Care

Description

This research will design, develop, implement, and evaluate the Patient Centered Adaptive Treatment Strategies (PCATS) juvenile idiopathic arthritis (JIA) tool called “PCATS.JIA.” a shared decision-making tool for monitoring and treatment of polyarticular juvenile idiopathic arthritis in children.

Grant Number
R21 HS029399
Principal Investigator(s)

Feasibility Study of a Mobile Digital Personal Health Record for Family- Centered Care Coordination for Children and Youth with Special Healthcare Needs

Description

This study will evaluate the feasibility of a digital personal health record mobile application for longitudinal care planning, patient/family-centered goal tracking, and communication with providers all integrated with electronic health records by Fast Healthcare Interoperability Resources data standards to enhance care coordination for families of children and youth with special healthcare needs.

Grant Number
R21 HS028699
Principal Investigator(s)

Implementation and Evaluation of psPRO: Person-Specific Patient-Reported Outcome Assessments for Patients in HIV Care Living with Multiple Chronic Conditions

Description

This research enhanced medical care and research by applying innovative health information technology strategies to improve methods for systematic collection and use of patient-reported data and outcomes (PROs) in clinical care for those with multiple chronic conditions using person-specific PRO domain prioritization.

Grant Number
U18 HS026154
Principal Investigator(s)