Patient Engagement


Bedside Notes: A Multicenter Trial to Improve Family Clinical Note Access and Outcomes for Hospitalized Children

Description

This research will evaluate the effectiveness of Bedside Notes, a digital health solution designed to provide caregivers with real-time access to clinical notes during their child’s hospitalization, with the goal of improving caregiver engagement in identifying and reporting safety concerns to reduce medical errors.

Grant Number
R01 HS030098
Principal Investigator(s)

Examining the Feasibility and Effectiveness of an mHealth Solution Designed to Enhance Clinical Outcomes Among Patients Attending Physical Therapy for Musculoskeletal Pain

Description

This research examines whether remote therapeutic monitoring can improve physical therapy outcomes by increasing patient engagement, adherence to home exercises, and communication with providers, while also assessing its impact on healthcare costs and feasibility for broader implementation.

Grant Number
R21 HS030158
Principal Investigator(s)

Patient Intestinal Failure-ECHO Project (PIF-ECHO)

Description

This study will evaluate the feasibility and effectiveness of providing chronic intestinal failure patients and their family caregivers with direct access to live, virtual, multi-disciplinary (multi-D) support and education on best practices from a team of experts and peers. Such support can improve patient outcomes by enhancing knowledge, increasing confidence in self-care, and fostering a support network where patients can share lived experiences.

Grant Number
R03 HS030321
Principal Investigator(s)

Using Large Language Models to Identify Social Determinants of Health to Enhance Healthcare Services and Equity

Description

This research explores using natural language processing and generative AI to capture and structure social determinants of health from patient narratives, aiming to improve data completeness and quality, enhance clinical decision support, and reduce the manual burden on clinical staff in routine care.

Grant Number
R21 HS029991
Principal Investigator(s)

Getting on the Same Page: Leveraging an Inpatient Portal to Engage Families of Hospitalized Children

Description

This study explored the use of and experiences with sharing inpatient notes during pediatric oncology hospitalization between parents and clinicians, with findings suggesting its potential to positively impact parent engagement and understanding in pediatric inpatient care and providing an opportunity to identify potential patient safety issues.

Grant Number
R21 HS027894
Principal Investigator(s)