This research will develop and pilot test a platform called Technology-based Enhanced Gender Support that will allow for gender-affirming care to be delivered via telehealth, with a goal of improving access to this care for Black, Indigenous, or People of Color and rural gender-diverse youth.
This research will design, develop, implement, and evaluate the Patient Centered Adaptive Treatment Strategies (PCATS) juvenile idiopathic arthritis (JIA) tool called “PCATS.JIA.” a shared decision-making tool for monitoring and treatment of polyarticular juvenile idiopathic arthritis in children.
This research aims to determine the effectiveness of a program designed to reduce medication-related issues among patients during the hospital-to-skilled nursing facility transition.
This research evaluated Cloud Care, a cloud-based longitudinal multidisciplinary care plan for children with medical complexity and found that perceived ease of use was high among parents and mixed among providers; barriers included an inability to view the care plan anywhere other than the child’s primary electronic health record (EHR) or patient portal, and the lack of data being able to flow between the EHR and Cloud Care.
This research developed a publicly available cost-effectiveness model for programs combining pharmacogenomics testing with clinical decision support alerts, so that decision makers may more robustly evaluate whether or not to implement such a program.
This research will apply innovative health information technology strategies to improve methods for systematic collection and use of patient-reported outcomes in clinical care for those with multiple chronic conditions using person-specific patient-reported outcomes.
This research assessed the use of a multi-risk adolescent interactive health assessment screening tool in pediatric primary care settings, which found an increased rate of clinician counseling for endorsed behaviors, but no significant change in reported risk behaviors or patient satisfaction.
This project applied a user-centered design process to understand the needs and attitudes for sharing patient-collected lifelog data with providers to improve management and decision making.
This project developed, implemented, and evaluated a voice-generated enhanced electronic note system and found that it did not improve the time to finalize notes or clinician satisfaction.
This research developed generalizable guidelines for the use of electronic patient-reported outcomes (PROs) in clinical practice across healthcare systems. Finding show that strategic governance, practical integration, and data reporting are key guiding principles to support the incorporation of PROs.
