Arthritis and Rheumatic Disease

Incorporating Patient-Reported Outcomes into Shared Decision Making with Patients with Osteoarthritis of the Knee - Final Report

Citation
Bozic K., Tsevat J. Incorporating Patient-Reported Outcomes into Shared Decision Making with Patients with Osteoarthritis of the Knee – Final Report. (Prepared by University of Texas - Austin under Grant No. R21 HS027037). Rockville, MD: Agency for Healthcare Research and Quality, 2024.
Principal Investigator
Bozic, Kevin John
Tsevat, Joel
Project Name
Incorporating Patient-Reported Outcomes into Shared Decision Making with Patients with Osteoarthritis of the Knee

Digital health technology to support patient-centered shared decision making at point of care for juvenile idiopathic arthritis.

Citation
Huang B, Kouril M, Chen C, Daraiseh NM, Ferraro K, Mannion ML, Brunner HI, Lovell DJ, Morgan EM. Digital health technology to support patient-centered shared decision making at point of care for juvenile idiopathic arthritis. Front Pediatr. 2024 Oct 25;12:1457538. doi: 10.3389/fped.2024.1457538. PMID: 39525833; PMCID: PMC11543470.
Principal Investigator
Morgan, Esi M.
Huang, Bin
Project Name
Inform Shared Decision Making with Advanced Bayesian Causal Inference to Improve Quality of Pediatric Rheumatology Care

Leveraging the Consolidated Framework for Implementation Research to develop the American College of Rheumatology's Toolkit for implementation of rheumatoid arthritis outcome measures in clinical practice: A qualitative study.

Citation
Nasrallah C, Schmajuk G, Hamblin A, Wilson C, Kersey E, Young C, Katz P, Bajaj P, Downey C, Bartels C, Zell J, Danila MI, Ferguson S, Barton JL, DeQuattro K, Yazdany J. Leveraging the Consolidated Framework for Implementation Research to develop the American College of Rheumatology's Toolkit for implementation of rheumatoid arthritis outcome measures in clinical practice: A qualitative study. Arthritis Care Res (Hoboken). 2024 Dec;76(12):1647-1656. doi: 10.1002/acr.25410. Epub 2024 Sep 5. PMID: 39099213.
Principal Investigator
Yazdany, Jinoos
Project Name
Rheumatology Informatics System for Effectiveness Patient-Reported Outcome (RISE PRO) Dissemination Project

Patient perceptions of an electronic-health-record-based rheumatoid arthritis outcomes dashboard: A mixed-methods study.

Citation
Nasrallah C, Wilson C, Hamblin A, Hariz C, Young C, Li J, Yazdany J, Schmajuk G. Patient perceptions of an electronic-health-record-based rheumatoid arthritis outcomes dashboard: A mixed-methods study. BMC Med Inform Decis Mak. 2024 Oct 12;24(1):302. doi: 10.1186/s12911-024-02696-9. PMID: 39395970; PMCID: PMC11470722.
Principal Investigator
Schmajuk, Gabriela
Project Name
Incorporating PRO Data Into RA Clinical Encounters Using Health-IT (PACT)

A step-by-step roadmap for the development and deployment of an electronic health record sidecar application that tracks patient outcomes: The RA PRO dashboard.

Citation
Schmajuk G, Nasrallah C, Berrean B, Prugh J, Wilson C, Hamblin A, Young C, Jacobsohn L, Kay J, Li J, Kersey E, Subash M, Murray S, Yazdany J. A step-by-step roadmap for the development and deployment of an electronic health record sidecar application that tracks patient outcomes: The RA PRO dashboard. Digit Health. 2024 Oct 10;10:20552076241288739. doi: 10.1177/20552076241288739. PMID: 39421306; PMCID: PMC11483702.
Principal Investigator
Schmajuk, Gabriela
Project Name
Incorporating PRO Data Into RA Clinical Encounters Using Health-IT (PACT)

"Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes.

Citation
Ragouzeos D, Gandrup J, Berrean B, Li J, Murphy M, Trupin L, Yazdany J, Schmajuk G. "Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes. Patient Educ Couns. 2019 Mar;102(3):503-510. doi: 10.1016/j.pec.2018.10.016. Epub 2018 Oct 28. PMID: 30446358; PMCID: PMC6421089.
Principal Investigator
Schmajuk, Gabriela
Project Name
Incorporating PRO Data Into RA Clinical Encounters Using Health-IT (PACT)

Using the technology acceptance model to assess clinician perceptions and experiences with a rheumatoid arthritis outcomes dashboard: Qualitative study.

Citation
Nasrallah C, Wilson C, Hamblin A, Young C, Jacobsohn L, Nakamura MC, Gross A, Matloubian M, Ashouri J, Yazdany J, Schmajuk G. Using the technology acceptance model to assess clinician perceptions and experiences with a rheumatoid arthritis outcomes dashboard: Qualitative study. BMC Med Inform Decis Mak. 2024 May 27;24(1):140. doi: 10.1186/s12911-024-02530-2. PMID: 38802865; PMCID: PMC11129391.
Principal Investigator
Schmajuk, Gabriela
Project Name
Incorporating PRO Data Into RA Clinical Encounters Using Health-IT (PACT)

An application programming interface implementing Bayesian approaches for evaluating effect of time-varying treatment with R and Python.

Citation
Chen C, Huang B, Kouril M, Liu J, Kim H, Sivaganisan S, Welge JA and DelBello MP (2023) An application programming interface implementing Bayesian approaches for evaluating effect of time-varying treatment with R and Python. Front. Comput. Sci. 5:1183380. doi: 10.3389/fcomp.2023.1183380
Principal Investigator
Morgan, Esi M.
Huang, Bin
Project Name
Inform Shared Decision Making with Advanced Bayesian Causal Inference to Improve Quality of Pediatric Rheumatology Care