Chronic Conditions

Patient Intestinal Failure-ECHO Project (PIF-ECHO)

Description

This study will evaluate the feasibility and effectiveness of providing chronic intestinal failure patients and their family caregivers with direct access to live, virtual, multi-disciplinary (multi-D) support and education on best practices from a team of experts and peers. Such support can improve patient outcomes by enhancing knowledge, increasing confidence in self-care, and fostering a support network where patients can share lived experiences.

Grant Number
R03 HS030321
Principal Investigator(s)
Iyer, Kishore R.

Incorporating Patient-Reported Outcomes into Shared Decision Making with Patients with Osteoarthritis of the Knee - Final Report

Citation
Bozic K., Tsevat J. Incorporating Patient-Reported Outcomes into Shared Decision Making with Patients with Osteoarthritis of the Knee – Final Report. (Prepared by University of Texas - Austin under Grant No. R21 HS027037). Rockville, MD: Agency for Healthcare Research and Quality, 2024.
Principal Investigator
Bozic, Kevin John
Tsevat, Joel
Project Name
Incorporating Patient-Reported Outcomes into Shared Decision Making with Patients with Osteoarthritis of the Knee

Caregiver and care team perceptions of online collaborative care planning for CMC.

Citation
Moore C, Adams S, Beatty M, Dharmaraj B, Desai AD, Bartlett L, Culbert E, Cohen E, Stinson JN, Orkin J. Caregiver and care team perceptions of online collaborative care planning for CMC. Pediatrics. 2024 Sep 1;154(3):e2024065884. doi: 10.1542/peds.2024-065884. PMID: 39188252.
Principal Investigator
Desai, Arti D.
Project Name
Cloud Care: A Feasibility Study of Cloud-Based Care Plans for Children With Medical Complexity

Nutri: A behavioral science-based clinical decision support for chronic disease management.

Citation
Burgermaster M, Rosenthal M, Tierney WM, Altillo BS, Nordquist E, Enriquez C, Andrews S, Klatt C, Daniels G. Nutri: A behavioral science-based clinical decision support for chronic disease management. AMIA Annu Symp Proc. 2023 Apr 29;2022:299-308. PMID: 37128464; PMCID: PMC10148289.
Principal Investigator
Burgermaster, Marissa
Project Name
Clinical Decision Support for Collaborative Diet Goal Setting in Primary Care

Patient-Centered Outcomes Research Clinical Decision Support (CDS) Connect

Description

This research developed and maintained the CDS Connect platform, including its public repository of CDS resources and tools. Current work explores the potential of public-private collaboration for long-term sustainability.

Contract Number
75FCMC18D0047_ 75Q80123F80001, 75FCMC18D0047_ 75Q80123F80004, 290-16-00001U
Principal Investigator(s)
Lenox, Michelle
Previous Principal Investigator(s)
Fabian, Lacy
Sebastian, Sharon
Quilty, Mary
McCready, Robert

School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services (STARS) for Children with Special Health Care Needs Living in Rural and Underserved Communities - Final Report

Citation
Marcin J. School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services for Children with Special Health Care Needs Living in Rural and Underserved Communities – Final Report. (Prepared by University of California, Davis under Grant No. R01 HS025714). Rockville, MD: Agency for Healthcare Research and Quality, 2023.
Principal Investigator
Marcin, James
Project Name
School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services for Children with Special Health Care Needs Living in Rural and Underserved Communities