This research study will pilot test BedsideNotes—a new capability within the inpatient portal to share physicians’ admission and daily notes with parents of children hospitalized on hematology/oncology and neonatal intensive care units.
This study will evaluate the feasibility of a digital personal health record mobile application for longitudinal care planning, patient/family-centered goal tracking, and communication with providers all integrated with electronic health records by Fast Healthcare Interoperability Resources data standards to enhance care coordination for families of children and youth with special healthcare needs.
This research will implement and evaluate the impact of integrating a quality-of-life assessment tool into routine care of those who have had pediatric organ transplantation.
This research will study the implementation of Telehealth Education for Asthma Connecting Hospital and Home (TEACHH), a novel intervention designed to provide an effective asthma educational platform appropriate for all health literacy levels. The intervention includes initial instruction in the hospital and reinforcement at home using virtual visits to reduce barriers to self-management support for children who are hospitalized due to asthma.
