Individuals with Disabilities

School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services (STARS) for Children with Special Health Care Needs Living in Rural and Underserved Communities - Final Report

Citation
Marcin J. School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services for Children with Special Health Care Needs Living in Rural and Underserved Communities – Final Report. (Prepared by University of California, Davis under Grant No. R01 HS025714). Rockville, MD: Agency for Healthcare Research and Quality, 2023.
Principal Investigator
Marcin, James
Project Name
School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services for Children with Special Health Care Needs Living in Rural and Underserved Communities

Parent, physician, and therapist experience of in-person, hybrid, and all-virtual models of physiatry care for children with special healthcare needs.

Citation
Haynes SC, Davidson L, Tancredi DJ, Burns RD, Garrison SL, Marcin JP. Parent, physician, and therapist experience of in-person, hybrid, and all-virtual models of physiatry care for children with special healthcare needs. Acad Pediatr. 2024 May 6:S1876-2859(24)00154-2. doi: 10.1016/j.acap.2024.04.011. Epub ahead of print. PMID: 38719092.
Principal Investigator
Marcin, James
Project Name
School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services for Children with Special Health Care Needs Living in Rural and Underserved Communities

Engaging the disability community in informatics research: Rationales and practical steps.

Citation
Valdez RS, Lyon SE, Wellbeloved-Stone C, Collins M, Rogers CC, Cantin-Garside KD, Gonclaves Fortes D, Kim C, Desai SS, Keim-Malpass J, Kushalnagar R. Engaging the disability community in informatics research: Rationales and practical steps. J Am Med Inform Assoc. 2022 Oct 7;29(11):1989-1995. doi: 10.1093/jamia/ocac136. PMID: 35972753; PMCID: PMC9552212.
Principal Investigator
Valdez, Rupa Sheth
Project Name
Accessibility and Beyond: Designing Consumer Health IT for Disabled Individuals

Implementing Personalized Cross-Sector Transitional Care Management to Promote Care Continuity, Reduce Low-Value Utilization, and Reduce the Burden of Treatment for High-Need, High-Cost Patients

Description

This research will integrate cross-sector care alerts and interoperable personalized care planning into the existing Coordinating Transitions Intervention (CTI) tool and evaluate the impact of the revised tool on patient burden, care team collaboration, and utilization value for high-need, high-cost patients.

Grant Number
R01 HS028000
Principal Investigator(s)
Hewner, Sharon

School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services for Children with Special Health Care Needs Living in Rural and Underserved Communities

Description

This study examined parent and provider experiences and care costs for in-person, hybrid, and all-virtual pediatric physiatry models in rural and underserved communities, concluding that the hybrid model—where therapists and patients are onsite and the pediatric physiatrist is present via telehealth—offers a high-quality, acceptable, and cost-effective alternative.

Grant Number
R01 HS025714
Principal Investigator(s)
Marcin, James