This research will refine a current health information exchange platform to improve data exchange for inter-hospital transfers, evaluate its impact, and create a dissemination toolkit so that others may adopt this model.
This study evaluated the feasibility of a mobile personal health record application integrated with electronic health records using Fast Healthcare Interoperability Resources standards for longitudinal care planning, goal tracking, and communication with providers among families of children and youth with special healthcare needs. It found that while technical feasibility and early adoption were high, sustained use was limited due to technical challenges and mixed user experiences.
This research evaluated Cloud Care, a cloud-based longitudinal multidisciplinary care plan for children with medical complexity and found that perceived ease of use was high among parents and mixed among providers; barriers included an inability to view the care plan anywhere other than the child’s primary electronic health record (EHR) or patient portal, and the lack of data being able to flow between the EHR and Cloud Care.
