Individuals with Special Health Care Needs


School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services (STARS) for Children with Special Health Care Needs Living in Rural and Underserved Communities - Final Report

Principal Investigator

Parent, physician, and therapist experience of in-person, hybrid, and all-virtual models of physiatry care for children with special healthcare needs.

Principal Investigator

Feasibility of implementation of a mobile digital personal health record to coordinate care for children and youth with special health care needs in primary care: Protocol for a mixed methods study.

Principal Investigator

Predictive modeling to identify children with complex health needs at risk for hospitalization.

Principal Investigator

Care coordination for children with special health needs using digital personal health records: A feasibility study protocol.

Principal Investigator

Implementation of an Electronic Care Plan for People With Multiple Chronic Conditions - Final Report

Principal Investigator

Feasibility Study of a Mobile Digital Personal Health Record for Family- Centered Care Coordination for Children and Youth with Special Healthcare Needs

Description

This study will evaluate the feasibility of a digital personal health record mobile application for longitudinal care planning, patient/family-centered goal tracking, and communication with providers all integrated with electronic health records by Fast Healthcare Interoperability Resources data standards to enhance care coordination for families of children and youth with special healthcare needs.

Grant Number
R21 HS028699
Principal Investigator(s)

Cloud Care: A Feasibility Study of Cloud-Based Care Plans for Children With Medical Complexity

Description

This research evaluated Cloud Care, a cloud-based longitudinal multidisciplinary care plan for children with medical complexity and found that perceived ease of use was high among parents and mixed among providers; barriers included an inability to view the care plan anywhere other than the child’s primary electronic health record (EHR) or patient portal, and the lack of data being able to flow between the EHR and Cloud Care.

Grant Number
R21 HS027465
Principal Investigator(s)