Individuals with Special Health Care Needs

Care coordination for children with special health needs using digital personal health records: A feasibility study protocol.

Principal Investigator

Implementation of an Electronic Care Plan for People With Multiple Chronic Conditions - Final Report

Principal Investigator

Feasibility Study of a Mobile Digital Personal Health Record for Family- Centered Care Coordination for Children and Youth with Special Healthcare Needs


This study will evaluate the feasibility of a digital personal health record mobile application for longitudinal care planning, patient/family-centered goal tracking, and communication with providers all integrated with electronic health records by Fast Healthcare Interoperability Resources data standards to enhance care coordination for families of children and youth with special healthcare needs.

Grant Number
R21 HS028699
Principal Investigator(s)