Individuals with Special Health Care Needs
This research will refine a current health information exchange platform to improve data exchange for inter-hospital transfers, evaluate its impact, and create a dissemination toolkit so that others may adopt this model.
Feasibility Study of a Mobile Digital Personal Health Record for Family- Centered Care Coordination for Children and Youth with Special Healthcare Needs
This study will evaluate the feasibility of a digital personal health record mobile application for longitudinal care planning, patient/family-centered goal tracking, and communication with providers all integrated with electronic health records by Fast Healthcare Interoperability Resources data standards to enhance care coordination for families of children and youth with special healthcare needs.
This research aims to determine the feasibility, acceptability, and outcomes associated with the use of Cloud Care, a cloud-based multidisciplinary care plan for children with medical complexity.
School-Based Tele-Physiatry Assistance for Rehabilitative and Therapeutic Services for Children with Special Health Care Needs Living in Rural and Underserved Communities
This project will determine the impact of using telemedicine to serve children with special healthcare needs living in rural and underserved communities.