Choi, Sung

Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

Description

This project developed a tool to promote activation, communication, engagement, and self-management of pediatric blood and marrow transplant patients and their parents and found that patient-centric tools can successfully engage caregivers in hospital care.

Grant Number
R21 HS023613
Principal Investigator(s)
Choi, Sung

A novel health information technology communication system to increase caregiver activation in the context of hospital-based pediatric hematopoietic cell transplantation: a pilot study.

Citation
Maher M, Hanauer DA, Kaziunas E, et al. A novel health information technology communication system to increase caregiver activation in the context of hospital-based pediatric hematopoietic cell transplantation: a pilot study. JMIR Research Protocols 2015 Oct;4(4):e119. PMID: 26508379.
Principal Investigator
Choi, Sung
Project Name
Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

Identifying unmet informational needs in the inpatient setting to increase patient and caregiver engagement in the context of pediatric hematopoietic stem cell transplantation.

Citation
Kaziunas E, Hanauer DA, Ackerman MS, et al. Identifying unmet informational needs in the inpatient setting to increase patient and caregiver engagement in the context of pediatric hematopoietic stem cell transplantation. J Am Med Inform Assoc 2016 Jan;23(1):94–104. PMID: 26510878.
Principal Investigator
Choi, Sung
Project Name
Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric hematopoietic cell transplantation.

Citation
Runaas L, Hanauer D, Maher M, et al. BMT roadmap: a user-centered design health information technology tool to promote patient-centered care in pediatric hematopoietic cell transplantation. Biol Blood Marrow Transplant 2017 May;23(5):813-9. PMID: 28132870.
Principal Investigator
Choi, Sung
Project Name
Personalized Engagement Tool for Pediatric BMT Patients and Caregivers

A qualitative exploration of the informed consent process in hematopoietic cell transplantation clinical research and opportunities for improvement.

Citation
Raj M, Choi SW, Platt J. A qualitative exploration of the informed consent process in hematopoietic cell transplantation clinical research and opportunities for improvement. Bone Marrow Transplant 2017 Feb;52(2):292-8. PMID: 27748736.
Principal Investigator
Choi, Sung
Project Name
Personalized Engagement Tool for Pediatric BMT Patients and Caregivers