The Clinical Decision Support Innovation Collaborative: Including the Patient’s Voice in Care
Subtheme:Empowering Patients and Caregivers to Improve Patient-Centered Care
The Clinical Decision Support Innovation Collaborative will integrate perspectives from diverse stakeholders, including patients and caregivers, clinicians, researchers, clinical decision support developers, informaticians, payers, and policymakers to produce resources and evidence to make clinical decision support more valuable and meaningful to patients, clinicians, and healthcare systems.
The patient’s voice in care
Recognizing that patients are the best source of information about their needs and preferences, patient-centered outcomes research (PCOR) evaluates questions and results from the lens of what is important to both patients and caregivers. Despite agreement among the medical community, researchers, and other stakeholders that PCOR has the potential to empower patients and improve outcomes, translating PCOR findings into clinical practice is challenging. Informing clinical decision support (CDS) with PCOR findings using both patient-centered and patient-specific information that aligns with patient needs, preferences, and values can help close this gap.
A collaborative to support uptake of PCOR-informed CDS
With AHRQ support, Dr. Prashila Dullabh and a team at the National Opinion Research Center at the University of Chicago and several partners have formed the Clinical Decision Support Innovation Collaborative (CDSiC) to advance the design, development, dissemination, implementation, use, measurement, and evaluation of evidence-based, interoperable, and publicly available patient-centered CDS. The collaborative will integrate perspectives from diverse stakeholders, including patients and caregivers, clinicians, researchers, CDS developers, informaticians, payers, and policymakers to produce resources and evidence to advance patient-centered CDS. It will feature an innovation center and a research and development hub to facilitate real-world CDS measurement and testing.
“We can make better use of evidence through digital tools that allow patients and clinicians to take advantage of available evidence to improve the quality of care that’s delivered.”
- Dr. Prashila Dullabh
Translating patient needs and preferences into care
This research has the potential to increase the use of PCOR evidence incorporation into patient-centered CDS that directly engages patients or caregivers via apps, patient portals, or in different settings, to improve the quality and safety of care. The CDSiC’s vision is for patients, caregivers, and clinicians to have the information to make evidence-informed decisions that improve the health and well-being of all individuals.