Patient-Generated Health Data

i-Matter: Investigating an mHealth Texting Tool for Embedding Patient-Reported Data into Diabetes Management - Final Report

Citation
Schoenthaler A., Mann D. i-Matter: Investigating an mHealth Texting Tool for Embedding Patient-Reported Data into Diabetes Management – Final Report. (Prepared by New York University School of Medicine under Grant No. R01 HS026522). Rockville, MD: Agency for Healthcare Research and Quality, 2023.
Principal Investigator
Schoenthaler, Antoinette
Mann, Devin M
Project Name
i-Matter: Investigating an mHealth Texting Tool for Embedding Patient-Reported Data into Diabetes Management

"Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes.

Citation
Ragouzeos D, Gandrup J, Berrean B, Li J, Murphy M, Trupin L, Yazdany J, Schmajuk G. "Am I OK?" using human centered design to empower rheumatoid arthritis patients through patient reported outcomes. Patient Educ Couns. 2019 Mar;102(3):503-510. doi: 10.1016/j.pec.2018.10.016. Epub 2018 Oct 28. PMID: 30446358; PMCID: PMC6421089.
Principal Investigator
Schmajuk, Gabriela
Project Name
Incorporating PRO Data Into RA Clinical Encounters Using Health-IT (PACT)

Implementation and Evaluation of psPRO: Person-Specific Patient-Reported Outcome Assessments for Patients in HIV Care living with Multiple Chronic Conditions - Final Report

Citation
Crane H., Lober W. Implementation and Evaluation of psPRO: Person-Specific Patient-Reported Outcome Assessments for Patients in HIV Care Living with Multiple Chronic Conditions – Final Report. (Prepared by University of Washington under Grant No. U18 HS026154). Rockville, MD: Agency for Healthcare Research and Quality, 2023.
Principal Investigator
Crane, Heidi M.
Lober, William B.
Project Name
Implementation and Evaluation of psPRO: Person-Specific Patient-Reported Outcome Assessments for Patients in HIV Care Living with Multiple Chronic Conditions

Scaling and spreading the electronic capture of patient-reported outcomes using a national surgical quality improvement programme: A feasibility study protocol.

Citation
Melucci AD, Liu JB, Brajcich BC, Collins CE, Kazaure HS, Ko CY, Pusic AL, Temple LK. Scaling and spreading the electronic capture of patient-reported outcomes using a national surgical quality improvement programme: A feasibility study protocol. BMJ Open Qual. 2022 Nov;11(4):e001909. doi: 10.1136/bmjoq-2022-001909. PMID: 36375858; PMCID: PMC9664302.
Principal Investigator
Ko, Clifford
Project Name
Scaling and Spreading Electronic Capture of Patient-Reported Outcomes Leveraging a National Surgical Quality Improvement Program

Patient acceptability and usability of a self-administered electronic patient-reported outcome assessment in HIV care: Relationship with health behaviors and outcomes.

Citation
Fredericksen RJ, Harding BN, Ruderman SA, McReynolds J, Barnes G, Lober WB, Fitzsimmons E, Nance RM, Whitney BM, Delaney JAC, Mathews WC, Willig J, Crane PK, Crane HM. Patient acceptability and usability of a self-administered electronic patient-reported outcome assessment in HIV care: Relationship with health behaviors and outcomes. AIDS Care. 2021 Sep;33(9):1167-1177. doi: 10.1080/09540121.2020.1845288. Epub 2020 Nov 15. PMID: 33190523; PMCID: PMC8121890.
Principal Investigator
Crane, Heidi M.
Lober, William B.
Project Name
Implementation and Evaluation of psPRO: Person-Specific Patient-Reported Outcome Assessments for Patients in HIV Care Living with Multiple Chronic Conditions

Capturing relevant patient data in clinical encounters through integration of an electronic patient-reported outcome system into routine primary care in a Boston community health center: Development and implementation study.

Citation
Loo S, Grasso C, Glushkina J, McReynolds J, Lober W, Crane H, Mayer KH. Capturing relevant patient data in clinical encounters through integration of an electronic patient-reported outcome system into routine primary care in a Boston community health center: Development and implementation study. J Med Internet Res. 2020 Aug 19;22(8):e16778. doi: 10.2196/16778. PMID: 32554372; PMCID: PMC7468634.
Principal Investigator
Crane, Heidi M.
Lober, William B.
Project Name
Implementation and Evaluation of psPRO: Person-Specific Patient-Reported Outcome Assessments for Patients in HIV Care Living with Multiple Chronic Conditions

Development of frail RISC-HIV: A risk score for predicting frailty risk in the short-term for care of people with HIV.

Citation
Ruderman SA, Nance RM, Drumright LN, Whitney BM, Hahn AW, Ma J, Haidar L, Eltonsy S, Mayer KH, Eron JJ, Greene M, Mathews WC, Webel A, Saag MS, Willig AL, Kamen C, McCaul M, Chander G, Cachay E, Lober WB, Pandya C, Cartujano-Barrera F, Kritchevsky SB, Austad SN, Landay A, Kitahata MM, Crane HM, Delaney JAC. Development of frail RISC-HIV: A risk score for predicting frailty risk in the short-term for care of people with HIV. AIDS. 2023 May 1;37(6):967-975. doi: 10.1097/QAD.0000000000003501. Epub 2023 Jan 31. PMID: 36723488; PMCID: PMC10079563.
Principal Investigator
Crane, Heidi M.
Lober, William B.
Project Name
Implementation and Evaluation of psPRO: Person-Specific Patient-Reported Outcome Assessments for Patients in HIV Care Living with Multiple Chronic Conditions