Patient-Generated Health Data

Tracking dynamic changes in implementation strategies over time within a hybrid type 2 trial of an electronic patient-reported oncology symptom and needs monitoring program.

Citation
Smith JD, Merle JL, Webster KA, Cahue S, Penedo FJ, Garcia SF. Tracking dynamic changes in implementation strategies over time within a hybrid type 2 trial of an electronic patient-reported oncology symptom and needs monitoring program. Front Health Serv. 2022 Nov 1;2:983217. doi: 10.3389/frhs.2022.983217. PMID: 36925901; PMCID: PMC10012686.
Principal Investigator
Garcia, Sofia
Penedo, Frank
Project Name
Expansion, Implementation, and Evaluation of Electronic Health Record-Integrated Patient-Reported Symptom Screening in a Comprehensive Cancer Center

PA-20-070 Integrating Patient-Reported Outcomes into Routine Primary Care: Monitoring Asthma Between Visits – Supplement Final Report

Citation
Rudin R. PA-20-070 Integrating Patient-Reported Outcomes into Routine Primary Care: Monitoring Asthma Between Visits – Final Report. (Prepared by RAND Corporation under Grant No. R18 HS026432-03S1). Rockville, MD: Agency for Healthcare Research and Quality, 2023.
Principal Investigator
Rudin, Robert Samuel
Project Name
Integrating Patient-Reported Outcomes Into Routine Primary Care: Monitoring Asthma Between Visits

Integrating Patient-Reported Outcomes into Routine Primary Care: Monitoring Asthma Between Visits – Final Report

Citation
Rudin R. Integrating Patient-Reported Outcomes into Routine Primary Care: Monitoring Asthma Between Visits – Final Report. (Prepared by RAND Corporation under Grant No. R18 HS026432). Rockville, MD: Agency for Healthcare Research and Quality, 2023.
Principal Investigator
Rudin, Robert Samuel
Project Name
Integrating Patient-Reported Outcomes Into Routine Primary Care: Monitoring Asthma Between Visits

Validity properties of a self-reported modified frailty phenotype among people with HIV in clinical care in the United States.

Citation
Ruderman SA, Webel AR, Willig AL, Drumright LN, Fitzpatrick AL, Odden MC, Cleveland JD, Burkholder G, Davey CH, Fleming J, Buford TW, Jones R, Nance RM, Whitney BM, Mixson LS, Hahn AW, Mayer KH, Greene M, Saag MS, Kamen C, Pandya C, Lober WB, Kitahata MM, Crane PK, Crane HM, Delaney JAC. Validity properties of a self-reported modified frailty phenotype among people with HIV in clinical care in the United States. J Assoc Nurses AIDS Care. 2023 Mar-Apr 01;34(2):158-170. doi: 10.1097/JNC.0000000000000389. Epub 2023 Jan 18. PMID: 36652200; PMCID: PMC10088432.
Principal Investigator
Crane, Heidi M.
Lober, William B.
Project Name
Implementation and Evaluation of psPRO: Person-Specific Patient-Reported Outcome Assessments for Patients in HIV Care Living with Multiple Chronic Conditions

Population health management approach to depression symptom monitoring in primary care via patient portal: A randomized controlled trial.

Citation
Staab EM, Franco MI, Zhu M, Wan W, Gibbons RD, Vinci LM, Beckman N, Yohanna D, Laiteerapong N. Population health management approach to depression symptom monitoring in primary care via patient portal: A randomized controlled trial. Am J Med Qual. 2023 Jul-Aug 01;38(4):188-195. doi: 10.1097/JMQ.0000000000000126. Epub 2023 Jun 15. PMID: 37314235.
Principal Investigator
Laiteerapong, Neda
Project Name
Patient Outcomes Reporting for Timely Assessments of Life with Depression: PORTAL-Depression

Subjective and objective burden on providers from a multicenter app-based study of patients with cirrhosis and caregivers.

Citation
Shaw J, Acharya C, Albhaisi S, Fagan A, McGeorge S, White MB, Lachar J, Olson J, Olofson A, Bergstrom L, Kamath PS, Bajaj JS. Subjective and objective burden on providers from a multicenter app-based study of patients with cirrhosis and caregivers. Hepatol Commun. 2023 Jan 27;7(2):e0030. doi: 10.1097/HC9.0000000000000030. PMID: 36706194; PMCID: PMC9988316.
Principal Investigator
Bajaj, Jasmohan S.
Project Name
Health IT-Generated PROs to Improve Outcomes in Cirrhosis